For people with learning disabilities, families and supporters
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Your life. Your plan.

Getting ready for tests and cancer care

Use the prompts that are helpful to you. You can write, draw, or ask someone to record your own words.

My appointment and main question

What is the test or appointment called? When and where is it? What do I most want to understand?

What staff need to explain

Why is the test proposed? What might it show? What are the choices, benefits and risks?

How I communicate

How should staff explain things? How will I ask questions, show pain or ask them to pause?

What helps me feel comfortable

Record useful timing, space, positioning, familiarisation, sensory support or breaks to discuss with the team.

Who I want involved

Who would I like with me? What information may be shared with them? Do I want private time with staff?

Preparation to check with the clinical team

Ask about food, drinks, medicines, equipment and transport. Record the team’s contact and where its official instructions are kept.

Getting home and aftercare

Who will explain what happens afterwards? What help might I need at home? Where are the team’s warning signs and contact instructions?

Results and next steps

How and when will I receive results? Who will explain them? Who should I contact if they do not arrive?

Questions still unanswered

What needs another discussion? Who has agreed to follow it up, and when? This page does not replace consent or clinical instructions.

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