Your life and support · England
Conditions and syndromes
Find out about conditions, genetic tests and support without a diagnosis.
30 guides to choose from.
30 guides in this topic.
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Understanding assessments
EducationHelp with reading, numbers and coordination
Ask for help with reading, numbers or coordination.
HealthAsking about a learning disability assessment
Find out how to ask for a learning disability assessment.
HealthAphasia and changes in language
Get help with changes in speaking or understanding language.
Conditions & syndromesWhen you do not have a diagnosis
Find support when a condition has no diagnosis yet.
Syndromes and conditions
Everyday lifeBeing a little person
Some people use the words little person or dwarfism. You can choose the words you prefer.
Conditions & syndromesDown’s syndrome
Find health checks and everyday support for Down’s syndrome.
Conditions & syndromesUnderstanding Edwards’ syndrome
Find care and family support for Edwards’ syndrome.
Conditions & syndromesAngelman syndrome
Find help with communication, movement and health.
Conditions & syndromesPrader–Willi syndrome
Prader–Willi syndrome is often called PWS. Each person needs their own support.
Conditions & syndromesMicrocephaly
Understand microcephaly and ask for support that fits you.
Conditions & syndromesHydrocephalus
Understand hydrocephalus and the support you may need.
Conditions & syndromesHydrocephalus shunts
Learn about shunts and when to get urgent help.
Conditions & syndromesUnderstanding Fragile X syndrome
Find help with learning, communication and sensory needs.
Conditions & syndromesUnderstanding PKU
PKU is a health condition you are born with. A specialist team helps you manage it.
Conditions & syndromesLiving with cerebral palsy
Learn about cerebral palsy and support with everyday life.
Conditions & syndromesUnderstanding Turner syndrome
Understand individual health checks and support with Turner syndrome.
Conditions & syndromesUnderstanding Klinefelter syndrome
Understand XXY, health checks, learning support and personal choices.
Conditions & syndromesChromosome deletions
Understand genetic results and support for different chromosome deletions.
Conditions & syndromesUnderstanding Usher syndrome
Find support for hearing, sight, communication and everyday life.
Conditions & syndromesUnderstanding Rett syndrome
Find support for communication, health and adult life with Rett syndrome.
Conditions & syndromesUnderstanding tuberous sclerosis
Find individual health checks and support for tuberous sclerosis.
Brain and nerve conditions
HealthAcquired brain injury
Understand changes after a brain injury, ask for assessment and find support with everyday life.
HealthMultiple sclerosis: MS
Understand MS, changing symptoms, specialist treatment and support with everyday life.
HealthParkinson’s and parkinsonism
Understand the different terms, changing symptoms, treatment and the importance of Parkinson’s medicine timings.
Related health and support
HealthPica: eating things that are not food
Pica means repeatedly eating things that are not food. You can ask for help to stay safe.
HealthGetting help with sleep
Sleep affects how you feel during the day. Support should fit your age, needs and choices.
HealthFood plans for your health
Some health conditions need a special food plan. Your plan should fit your own needs.
HealthAsthma and my inhaler
Ask for an asthma plan, an inhaler you can use and support that fits your life.
HealthMy blood pressure check
Understand blood pressure checks, ask for adjustments and agree what happens after the result.
HealthRehabilitation and everyday life
Understand rehabilitation, choose meaningful goals and plan coordinated support after illness or injury.
Find support that works for you
People with the same condition can have different needs. A diagnosis does not tell you everything about a person.